OIT: Updose #6 (sort of)

We were in Burlington this past Thursday for updose #6. Jaya had a slight fever and was very congested.  Dr Hanna thought her symptoms could either be due to a cold or the onset of a seasonal allergy.  Oral Immunotherapy is individualized because the dosing schedule is affected by many factors which can increase the…

OIT : Updose #5

I am writing this after taking Jaya back to school after she ate lunch at home.  Today is Friday  which is pizza day at Jaya’s school.  On Fridays, the whole student body and some staff eat pizza for lunch so the school smells of it and Jaya’s classroom is no exception. With every student around…

The (Un)Rest Period

My daily routine includes giving Sahil and Jaya their OIT dose. After they eat dinner they take their dose and then relax for the two hour rest period.   Their rest period is my period of unrest as I monitor them for any signs of an allergic reaction. Since we started OIT in mid-February Sahil…

Living Arrows & OIT: Updose #4

“You are the bows from which your children as living arrows are set forth”, K. Gibran. As a parent I must prepare my children to become capable, resilient  and independent people. For my kids this includes how they must protect themselves against a life threatening allergic reaction and how to manage a reaction if it…

OIT: Updose #3

Today we were in Burlington for updose #3. Jaya has been sick for the last 2 days with a fever, runny nose & stomach ache so I wasn’t sure if Dr Mack would do the updose today but he did. Jaya will now be on 8 drops of the diluted milk solution. Ten minutes after…

School Safety

One of the most difficult challenges of being a parent of food allergic children is to entrust them to someone else.  If they just stayed at home it would be easy but this is neither feasible nor desirable. They spend more hours at school than at home. Sahil and Jaya eat their snack and lunch…

Burlington Bound, Updose #2

Yesterday we made our biweekly drive to Burlington, Ontario to see Dr Mack, the pediatric allergist who is treating Sahil and Jaya. Or as Jaya calls him Dr “Mac and Cheese” which is ironic since she cannot eat the real stuff…..yet!  I think of him and Dr Hanna as heroes as they are the only…

Thinking of Andrea

In September 2015, Andrea Mariano started her first year at Queen’s University in Kingston, Ontario.  She was 18 years old and allergic to peanuts and dairy.  Her life was one of constant vigilance to ensure she was not exposed to her allergens.  Tragically, she had an anaphylactic reaction to a drink she ordered from Booster…

Tiny Doses

Oral immunotherapy (OIT) for life threatening food allergies starts with ingesting tiny doses of the allergen.  Tiny doses so the immune system lets it go undetected.  This is because if the dose is detected it will trigger an anaphylactic reaction which can only be stopped with a shot of life saving epinephrine. We continue with…

Full of Hope

As I mentioned in my blog post “Seeking a cure” my kids started oral immunotherapy in mid February.  We travel for an hour each way once every two weeks for the in office up-dose of the allergen being treated.  We will return to the allergist this week. They each have multiple allergies so over time…

Jealousy

Jealousy. I deal with my feelings of jealousy daily. I am jealous of families who do not have to deal with food allergies. Those families can take a break from cooking and go out for a meal at a restaurant or pick something up on the way home.  They can plan a vacation without checking…

Seeking A Cure

A cure for anaphylactic food allergies would give my children a chance at a normal life where food is not a danger and a threat to their lives but something to be savoured and enjoyed.  I want our children to experience birthday parties and sleepovers, field trips and school celebration days without being excluded due to…