Life is a Challenge

Just over eleven years ago when he was 2 years old Sahil reacted to peanut butter residue.  Over the years, Sahil has tested positive to peanuts, soy  and various tree nuts on blood tests & skin prick tests conducted by various allergists. He has reacted to peanut and soy after ingestion but as far as…

Bullying

Food Allergy Bullying It is the bullying of those with food allergies. I first encountered food allergy bullying when Sahil was 5 and in Senior Kindergarten.  He was in a small school with just 8 other children in his class.  He and another child were the only boys so being friends with that one other…

Relief Evaporated

The relief I experienced on Thursday evaporated on Friday. This is what happened: 7 pm : I gave Jaya the 2 mL milk dose; she complained of stinging under her tongue which is not unusual so I was not concerned.  7:15:  She sneezed 5 times & sounded slightly congested. 7:30:  Her congestion seemed to be…

OIT update: Updose #11 & Holding

It has been 8 1/2 months since we started our OIT journey. Sahil’s treatment for his peanut allergy has been smoother than Jaya’s treatment for her dairy allergy. In Feb 2017 Sahil started with a peanut solution of 1/1000th of a peanut.  For the last four weeks – since early October – Sahil has been…

Teal Pumpkins & an OIT update

During our October 5 visit to Burlington we noticed a large orange pumpkin at the reception desk.  We thought the office should have a teal pumpkin so last Thursday we took one along and presented it to Dr Mack and Dr Hanna.  It now sits atop the reception desk as a symbol of food allergy…

Our Checklist for Visiting the ER

A visit to the hospital’s emergency room is difficult and when you have a food allergic child it is even harder.  For example, we can’t grab a snack at the hospital cafeteria while we are waiting to be seen.  We must inform each person who interacts with our child of their allergies to prevent accidental…

OIT Updose #13 & Still Holding at #10

Sahil updosed to 2 whole peanuts today.  Dr Mack congratulated him on coming this far in the OIT journey and asked Sahil how much further he would like to go.  Sahil said he would like to reach the end of Dr Mack’s protocol which is 4 peanuts a day.  This would allow Sahil to eat…

Food

Food sustains life, provides nutrition, evokes the senses, gives comfort & joy, bonds friends and families. For my children food is also poison. We usually teach children to share but from a very young age I have taught my children never to share food. And, not to accept food that is being offered to them…

Quick OIT update

Tomorrow is the 2nd Annual Walk for Andrea. I am busy getting things together for the event so this is a quick update about our appointment this past Thursday. OIT Updose #12 Sahil updosed to 1.5 peanuts! He tolerated the dose and did not complain of any symptoms. Jaya was not able to updose.  She…

OIT: Updose #10 & #11

OIT update Jaya – Updose #10 Jaya has been tolerating her daily dose of 0.5 mL whole milk these past two weeks.  I did notice she has been clearing her throat during the last few days. I mentioned it to Dr Mack today and he said it could be due to seasonal allergies and post…

OIT: Small Steps

OIT update: Hold Dose at #10 & Updose #9 The last two weeks between our updose appointments have been a little rough. Sahil was sick with a fever and congestion for several days so he was on the illness dose of 0.2 g for 5 days and the regular dose of 0.75 g (3/4 peanut)…

OIT: Hoping for Boring

  We returned to Burlington today for Sahil and Jaya’s regular oral immunotherapy appointment. I felt anxious returning for the first time since Jaya’s reaction two weeks ago. As I entered the clinic the memories from two weeks ago resurfaced.  I quickly pushed them back down again. Since her reaction at 20 drops of undiluted…