Our Checklist for Visiting the ER

A visit to the hospital’s emergency room is difficult and when you have a food allergic child it is even harder.  For example, we can’t grab a snack at the hospital cafeteria while we are waiting to be seen.  We must inform each person who interacts with our child of their allergies to prevent accidental…

OIT Updose #13 & Still Holding at #10

Sahil updosed to 2 whole peanuts today.  Dr Mack congratulated him on coming this far in the OIT journey and asked Sahil how much further he would like to go.  Sahil said he would like to reach the end of Dr Mack’s protocol which is 4 peanuts a day.  This would allow Sahil to eat…

Food

Food sustains life, provides nutrition, evokes the senses, gives comfort & joy, bonds friends and families. For my children food is also poison. We usually teach children to share but from a very young age I have taught my children never to share food. And, not to accept food that is being offered to them…

Quick OIT update

Tomorrow is the 2nd Annual Walk for Andrea. I am busy getting things together for the event so this is a quick update about our appointment this past Thursday. OIT Updose #12 Sahil updosed to 1.5 peanuts! He tolerated the dose and did not complain of any symptoms. Jaya was not able to updose.  She…

OIT: Updose #10 & #11

OIT update Jaya – Updose #10 Jaya has been tolerating her daily dose of 0.5 mL whole milk these past two weeks.  I did notice she has been clearing her throat during the last few days. I mentioned it to Dr Mack today and he said it could be due to seasonal allergies and post…

OIT: Small Steps

OIT update: Hold Dose at #10 & Updose #9 The last two weeks between our updose appointments have been a little rough. Sahil was sick with a fever and congestion for several days so he was on the illness dose of 0.2 g for 5 days and the regular dose of 0.75 g (3/4 peanut)…

OIT: Hoping for Boring

  We returned to Burlington today for Sahil and Jaya’s regular oral immunotherapy appointment. I felt anxious returning for the first time since Jaya’s reaction two weeks ago. As I entered the clinic the memories from two weeks ago resurfaced.  I quickly pushed them back down again. Since her reaction at 20 drops of undiluted…

OIT: Updose #9

This OIT update is a difficult one. This past Thursday Sahil and Jaya received updose #9.  I was hoping for another boring updose appointment but it didn’t turn out that way. 9:20 am – Jaya got updose #9: 20 drops of milk.   A few minutes after the dose, she started to complain of a…

OIT: Updose #8 & Thinking of Karan

Jaya and I went to Burlington early this morning for her OIT updose #8. Sahil is in a camp this week so we elected to delay his 9th updose to July 27. He will continue on the current dose of 1/4 peanut until his next appointment.  The good news is he is finding it easier…

OIT: Updoses 7 & 8

Yesterday was a major milestone in the OIT journey for both Sahil and Jaya. Sahil ate 1/4 of a peanut.  After eating it he complained of a scratchy feeling in his throat, on his tongue and in his right ear.  These symptoms subsided after about five minutes. Jaya had 5 drops of undiluted milk.  She…

The Real Stuff

Tomorrow: Jaya will get updose #7 which is 5 drops of actual milk. Sahil will get updose #8 which is 1/4th of an actual peanut. Until now OIT hasn’t felt real to me because they are receiving their allergens in forms which don’t look like the real thing.   It is a surreal feeling to…

Siblings & OIT: Updoses #6, #7

Two weeks ago, at our last OIT appointment, Jaya was congested and had a fever so she did not receive updose #6 as per the usual dosing schedule.  Her cough and cold symptoms persisted so she has been on a few illness day doses (8 drops) during the last two weeks. When she felt better…